September 27, 2015
I have no new update, but some people have asked me about the latest status so I
figured I’d check in with everyone so you can know what is happening (or isn’t
happening).
First & foremost-Nolan turned 8 years old on Wednesday! We celebrated the day with shopping for a brand new bike! Nolan then came home and tested it out. He was happy to have a day off from school work! We celebrated that evening with pizza and a small family party. Once again Mema did her magic with Nolan’s request of a “Storm Trooper” cake from Star Wars. I tried to add photos directly into the blog-but that feature must not like my computer. So if you scroll down to the bottom of the page you'll see a couple pics with the birthday boy!
In boring medical news, there is no new news. I had an appointment with a specialist on Sept. 18th and he ordered more lab work & a specialized liver test. I took care of the lab work that very same day, however the earliest appointment for the fibro scan I could get was October 22. I have attempted to call several times over the last week to see if there have been any cancellations, so I could get in earlier. This test is only done (supposedly) at a center in Roseville. This whole process is delaying my ability to get on the heart transplant waiting list. Until all the tests are completed and I have the consult again with the specialist on October 30th…there will be no further movement on the transplant side of things.
I did start the new medications last week. My blood pressure has been lowered, and for the most part, I feel less “heart gymnastics”. I also feel like my appetite has increased, which in my case right now is a good thing.
After spending way more time on the phone last week than I wanted to, trying to get an earlier appointment to no avail, I’ve decided that God’s purpose is for the appointment on October 22nd. This later date is allowing me some “free” time to do a little bit of traveling.
I’ll be lounging in Bodega Bay the end of this week with my sister, drinking in the wonders and majesty of the great sea. The following week, Scott and I will celebrate our 15th wedding anniversary. We’ll stay local for the actual anniversary date. Later this month, we will travel to Monterey for business & pleasure. (When you have your own business you have to combine stuff sometimes).
Several songs have been touching my heart over the last couple of weeks but I’ve chosen the following one to share because I think God is telling me to share it; based on a conversation with a friend last night, and then an email from a dear friend who also wanted to share this same song with me. That’s how HE works sometimes…through others.
First & foremost-Nolan turned 8 years old on Wednesday! We celebrated the day with shopping for a brand new bike! Nolan then came home and tested it out. He was happy to have a day off from school work! We celebrated that evening with pizza and a small family party. Once again Mema did her magic with Nolan’s request of a “Storm Trooper” cake from Star Wars. I tried to add photos directly into the blog-but that feature must not like my computer. So if you scroll down to the bottom of the page you'll see a couple pics with the birthday boy!
In boring medical news, there is no new news. I had an appointment with a specialist on Sept. 18th and he ordered more lab work & a specialized liver test. I took care of the lab work that very same day, however the earliest appointment for the fibro scan I could get was October 22. I have attempted to call several times over the last week to see if there have been any cancellations, so I could get in earlier. This test is only done (supposedly) at a center in Roseville. This whole process is delaying my ability to get on the heart transplant waiting list. Until all the tests are completed and I have the consult again with the specialist on October 30th…there will be no further movement on the transplant side of things.
I did start the new medications last week. My blood pressure has been lowered, and for the most part, I feel less “heart gymnastics”. I also feel like my appetite has increased, which in my case right now is a good thing.
After spending way more time on the phone last week than I wanted to, trying to get an earlier appointment to no avail, I’ve decided that God’s purpose is for the appointment on October 22nd. This later date is allowing me some “free” time to do a little bit of traveling.
I’ll be lounging in Bodega Bay the end of this week with my sister, drinking in the wonders and majesty of the great sea. The following week, Scott and I will celebrate our 15th wedding anniversary. We’ll stay local for the actual anniversary date. Later this month, we will travel to Monterey for business & pleasure. (When you have your own business you have to combine stuff sometimes).
Several songs have been touching my heart over the last couple of weeks but I’ve chosen the following one to share because I think God is telling me to share it; based on a conversation with a friend last night, and then an email from a dear friend who also wanted to share this same song with me. That’s how HE works sometimes…through others.
Just Be Held by
Casting Crowns
Hold it all together
Everybody needs you strong
But life hits you out of nowhere
And barely leaves you holding on
And when you're tired of fighting
Chained by your control
There's freedom in surrender
Lay it down and let it go
So when you're on your knees and answers seem so far away
You're not alone, stop holding on and just be held
Your worlds not falling apart, its falling into place
I'm on the throne, stop holding on and just be held
Just be held, just be held
If your eyes are on the storm
You'll wonder if I love you still
But if your eyes are on the cross
You'll know I always have and I always will
And not a tear is wasted
In time, you'll understand
I'm painting beauty with the ashes
Your life is in My hands
Lift your hands, lift your eyes
In the storm is where you'll find Me
And where you are, I'll hold your heart
I'll hold your heart
Come to Me, find your rest
In the arms of the God who won’t let go
Everybody needs you strong
But life hits you out of nowhere
And barely leaves you holding on
And when you're tired of fighting
Chained by your control
There's freedom in surrender
Lay it down and let it go
So when you're on your knees and answers seem so far away
You're not alone, stop holding on and just be held
Your worlds not falling apart, its falling into place
I'm on the throne, stop holding on and just be held
Just be held, just be held
If your eyes are on the storm
You'll wonder if I love you still
But if your eyes are on the cross
You'll know I always have and I always will
And not a tear is wasted
In time, you'll understand
I'm painting beauty with the ashes
Your life is in My hands
Lift your hands, lift your eyes
In the storm is where you'll find Me
And where you are, I'll hold your heart
I'll hold your heart
Come to Me, find your rest
In the arms of the God who won’t let go
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