The Limbo game continues...

I’m still here!  Haven’t moved much from my last medical update Blog post.  I did have the test in October and the follow-up appointment just before Halloween.  Then some more waiting as the ball was tossed to the transplant team.

The results of the liver test did show Stage 4 liver fibrosis, however the plan is to treat it with medication.  Treatment should take about six months, and we’re just waiting for approval from the insurance company.  The medications came out in 2013 & 2014 so we’re hoping for the costs to not be too outrageous.  My liver specialist didn’t see any reason to not be listed for the heart transplant during treatment and asserted that I was not in liver failure and did not need a liver transplant.

After a lengthy conversation Saturday with a doctor on the transplant team, and then an in-depth conversation with Scott and quiet time with God, it may be that we are being lead to pursue plan B for this second heart transplant to be at Stanford, where the first one took place.  I have a feeling that God may want me back there and may have wanted me back there the whole time. But I’ve been stubborn, holding out for my convenience, rather than what is best for me and my crazy body.  I’m hoping to have additional answers late in the week, but for now I’m still waiting to be put on “the waiting list”.

In the meantime…the latest song called to me last week after my appointment where I learned of the fibrosis and it got me through yesterday as I struggled with my will and God’s will and finally remembered I am not my own.

"Hope Now"-Addison Road

If everything comes down to love
Then just what am I afraid of
When I call out Your name
Something inside awakes in my soul
How quickly I forget I'm Yours

I'm not my own
I've been carried by You
All my life

Everything rides on hope now
Everything rides on faith somehow
When the world has broken me down
Your love sets me free

When my life is like a storm
Rising waters all I want is the shore
You say I'll be ok and
Make it through the rain
You are my shelter from the storm

I'm not my own
I've been carried by You
All my life

Everything rides on hope now
Everything rides on faith somehow
When the world has broken me down
Your love sets me free

Everything rides on hope now
Everything rides on faith somehow
When the world has broken me down
Your love sets me free
You've become my heart’s desire

I will sing Your praises higher
Cause Your love sets me free

Your love sets me free
Your love sets me free